About

Hi everyone!! I’m a 40 year old male living with a Congenital Heart Defect. In fact I was born with 2 of them. Pulmonary Atresia (PA) where the pulmonary valve never develops, and therefore blood can’t get to the lungs. The other is Right Ventricular Hypertrophy (RVH) which is simply a small right ventricle. Mine was about 3/4 of normal size. These are my defects and not who I am.

I am a fun loving, bright man. I have raised a son by myself. He’s in his Junior year of college and he’s the best thing I’ve ever done. Beyond that I enjoy nature, photography, cooking, playing guitar, and experiencing new things. I don’t have a lot or make a lot, but I’m more than fine with that. I have a lot of ¬†great friends and a wonderful supportive family. My wish is too soon be able to travel. Many of my friends did¬†this in their youth. I had a family so my money and time was devoted to other things.

 

In the future I want to buy a motorcycle and couch surf across country with my dog. I have the bike all picked out. It’s a Ural and it comes with a side car. Perfect if you have a furry companion with you.

  1. Doesn’t our life suck sometimes? I am a 37-yr old with Tricuspid Atresia, and HRHS. I have had my Fontan, and my Fontan revision, and am now waiting for transplant. Right now I am “too healthy” for transplant, so I am not even on the list. Kinda sucks. I also now have Cirrohis (sp) of the liver due to my heart defect!! So I will also have to have a liver transplant, hopefully at the same time as the heart!

    • Hey Sara. I’m sort of in the same boat as you. I am still doing some testing at Boston, and we will see what they can do. They have already said they don’t think I’m ready for a transplant and 7 years ago they said I was to sick to have surgery. I have found that doing this blog and other projects have helped me over the last few weeks. If nothing else it gives me something other than my CHD to think about for a while. I would like to invite you to join a project that I’m working on. I am putting together a journal of people with CHDs. Each person is given 2 pages to do anything they want with. Some have chosen to do it on the computer and some have chosen to do it by hand. Some of the things people have done are: Telling their story, a week in the life of, a pictoral representation of their life. It’s up to you to choose. If nothing else it will give you something to do for a while. Give me a shout if your interested. j.ritchings@gmail.com

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